Monday, July 19, 2010

Surgery.......

Christopher has an appointment tomorrow morning to "fix" his tongue! Christopher is tongue tied so 9:45 am we are going to get it snipped! He has no idea, but I am getting anxious for him! Dr. Simon will have to use general anesthesia, due to his age, but says it will take 15-20 minutes. The remarkable thing about your tongue, it heals within 24 hours! If we leave his tongue the way it is, it will lead to pronounced speech problems. Ideally, this is done when they are younger, then you don't have to be put under, but with everything else this little man has been going through!
We met with Sara, our PT on Friday and this morning, and today proved a little more challenging! Christopher wants to be on the move, trying to get his stretches in were a team effort, and we are trying to get him to use his left arm more for development purposes. We are trying to get him to extend and reach upward. The only constant with Christopher is that he goes right down for his nap afterwards without any problems!
Also wanted to add that Christopher got his first tooth! It explains a lot!!!!!!!
We are getting ready for a much needed vacation next week, the older kids are getting excited, I am too. I cannot wait to see what the twins think of the beach, and getting pictures of all of them on the beach, will make it worth all of the preparations and planning.

Tuesday, July 13, 2010

Progress!

I cannot believe that yesterday was Christopher's 3 month appointment. The improvements are significant in that short time. If I had the computer skills and the equipment I could display the scan for you today, but that will be at a later date! Our first scan was taken on April 12, it showed that Christopher was a candidate for a CRO, and that he was measuring a difference of 13.1 mm, his 3 month scan showed improvements of 8.4 mm! The scan takes around 11 seconds, and he was completely unaware that he was being measured! It is then transferred to a computer that recreates a 3d image on the screen, it is wild to see a 3d image on the screen floating around of your baby! Imagine an X on the top of your head, that's how the measurements are taken, so its on top of the head if you will. The growth was exactly where we needed it, above the left front and the right rear, and the growth stopped on the right front. The right frontal growth would have contributed to facial malformations that couldn't be corrected in the future that was part of the urgency of getting the helmet. Laura also noted that he is still pulling his head to the left, his tort, and she gave me some helpful suggestions on holding him to get him to strengthen the muscles in his neck. Now that he wants to be on the move and not held, his physical therapy is crucial in his continued progress. We are thinking he will be wearing his helmet until his birthday, which is September. We are so proud of his progress!